It seems Jonathan wanted to join in on the fun of moving - he was transferred today to the Royal Free, our local hospital.
It felt quite strange last night when we were packing away his things at the neonatal unit at St Thomas' after 10 weeks (plus 1 day) there. We'd gotten to know some of the nurses, doctors & parents there quite well & in a way were starting to feel quite at home there.
The local hospital is quite different - much smaller & quieter & not quite as well-equipped & high tech as St Thomas', it made us realise how spoilt we'd been at St Thomas'! Jonathan has also lost his window spot with a view of the London eye and is now in a corner spot in a room with no windows, ah well...
It's also a little scary because there's a new team of people looking after Jonathan & they don't yet know him very well so we're hoping they make the right decisions for his care. They're also not as experienced with dealing with complicated babies - the nurse today was telling me they only get one baby with a stoma every 6 months (at St Thomas' we'd met at least 5 other babies who had a stoma while we were there) and the nurse was actually asking me to talk her through how to change a leaky stoma bag! So it's been quite a change for us all!
The good thing is that they seem to be preparing us for taking Jonathan home so hopefully we won't have to be at the local hospital for too long. Jonathan will most likely still need to be on oxygen when he comes home so the community nurses will be visiting our flat to get us set up for oxygen tanks. As Jonathan will also still be having tube feeds, we will also need to be properly trained on how to test the nasogastric tube & feed him using the tube, as well as how to pass the tube into his stomach in case he pulls it out. Sounds like we'll be super busy when he does come home!
I'm attempting for the first time to blog on my phone & I haven't figured out how to post photos so I'm afraid there won't be any for now...I'm just hoping that this post will actually work or otherwise I would've just spent a long time typing on my phone for nothing! Ok, fingers crossed that it works...
It felt quite strange last night when we were packing away his things at the neonatal unit at St Thomas' after 10 weeks (plus 1 day) there. We'd gotten to know some of the nurses, doctors & parents there quite well & in a way were starting to feel quite at home there.
The local hospital is quite different - much smaller & quieter & not quite as well-equipped & high tech as St Thomas', it made us realise how spoilt we'd been at St Thomas'! Jonathan has also lost his window spot with a view of the London eye and is now in a corner spot in a room with no windows, ah well...
It's also a little scary because there's a new team of people looking after Jonathan & they don't yet know him very well so we're hoping they make the right decisions for his care. They're also not as experienced with dealing with complicated babies - the nurse today was telling me they only get one baby with a stoma every 6 months (at St Thomas' we'd met at least 5 other babies who had a stoma while we were there) and the nurse was actually asking me to talk her through how to change a leaky stoma bag! So it's been quite a change for us all!
The good thing is that they seem to be preparing us for taking Jonathan home so hopefully we won't have to be at the local hospital for too long. Jonathan will most likely still need to be on oxygen when he comes home so the community nurses will be visiting our flat to get us set up for oxygen tanks. As Jonathan will also still be having tube feeds, we will also need to be properly trained on how to test the nasogastric tube & feed him using the tube, as well as how to pass the tube into his stomach in case he pulls it out. Sounds like we'll be super busy when he does come home!
I'm attempting for the first time to blog on my phone & I haven't figured out how to post photos so I'm afraid there won't be any for now...I'm just hoping that this post will actually work or otherwise I would've just spent a long time typing on my phone for nothing! Ok, fingers crossed that it works...
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1 comment:
We're so happy that things are stable. Well done Telephone Blogger.
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