Jonathan got to leave St Thomas's hospital for the first time ever today for a mini trip out to Great Ormond Street Hospital for his neurology appointment.
It was quite an elaborate operation as he was put in a special transport incubator for babies and was taken by ambulance with 2 ambulance drivers and a nurse escorting him for the 15 minute ride. The nurse told us that he seemed to really enjoy the trip and was happily looking out the window at the trees and lamp posts going by.
We also got some good news from the neurosurgeon who told us that he doesn't think that Jonathan actually has hydrocephalus - hooray! His conclusion was based on some tests he did on Jonathan's reflexes using one of those small rubber hammery things, the MRI scan images they'd taken at St Thomas's a few weeks ago and the measurements of Jonathan's head circumference that were taken at St Thomas's over the weeks.
The neurosurgeon said that the channels between the 2 sides of Jonathan's brain developed a little differently than in normal babies but he also said that that isn't so unusual and it may make it seem on scans that there is more fluid than there actually is. He didn't absolutely rule out the possibility of hydrocephalus developing later on but he was satisfied enough not to need to see Jonathan again on the brain side of things. He did suggest however that Jonathan is followed up on the spinal abnormalities (a few of his vertebrae are fused together rather than being separate) when he is around a year old.
Overall we are really happy with how the neurosurgery appointment went and are very relieved that it seems Jonathan brain is ok!
Here are a couple of photos of Jonathan with his transport incubator:
And here are a few other random photos we've taken over the last few days:
It was quite an elaborate operation as he was put in a special transport incubator for babies and was taken by ambulance with 2 ambulance drivers and a nurse escorting him for the 15 minute ride. The nurse told us that he seemed to really enjoy the trip and was happily looking out the window at the trees and lamp posts going by.
We also got some good news from the neurosurgeon who told us that he doesn't think that Jonathan actually has hydrocephalus - hooray! His conclusion was based on some tests he did on Jonathan's reflexes using one of those small rubber hammery things, the MRI scan images they'd taken at St Thomas's a few weeks ago and the measurements of Jonathan's head circumference that were taken at St Thomas's over the weeks.
The neurosurgeon said that the channels between the 2 sides of Jonathan's brain developed a little differently than in normal babies but he also said that that isn't so unusual and it may make it seem on scans that there is more fluid than there actually is. He didn't absolutely rule out the possibility of hydrocephalus developing later on but he was satisfied enough not to need to see Jonathan again on the brain side of things. He did suggest however that Jonathan is followed up on the spinal abnormalities (a few of his vertebrae are fused together rather than being separate) when he is around a year old.
Overall we are really happy with how the neurosurgery appointment went and are very relieved that it seems Jonathan brain is ok!
Here are a couple of photos of Jonathan with his transport incubator:
And here are a few other random photos we've taken over the last few days:
6 comments:
Hooray for the good news from the neurosurgeon. Jonathan is still beautiful even when he' not happy. Love Dawnie.
So happy to hear the good news.
Lynda
YAY! go jonathan :) wait till you see the rest of the world out there...so many trees and people to see xx
Oh, such exciting news you guys! Hooray! Yay Jonathan.
Good news!
jonathan the best!
tony
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