23rd January 2011
Tuesday, 25 January 2011
9 Days Old
21st January 2011 - part of an email from Tracy
Jonathan's been fine during the night but when they looked at his aspirates, there were chunks of stuff back in there so they've decided to stop the feeds via the mouth for now and the gastro surgeons are doing another x-ray this afternoon to make sure there aren't any obstructions higher up in the gut. (The results of the tests showed that stuff was flowing through his gut, but a lot slower than expected ... so they've to stop the feeds and give his stomach a bit more time to see if it works itself out).
The cardiologists want to take some more pictures to make sure they know where the blood flow in a particular area is going so they're doing some more imaging stuff this afternoon, there was mention of using saline or something to get a clearer picture. (The results of this scan showed that the part they were looking it was behaving as it should - but he still has his VSD + DORV).
They have no cots available at King's at the moment so they're waiting for a cot to become available and he will then be transferred there for more observations before they go ahead with anything. They'll let us know before anything happens. (The team of neurosurgeons are based at Kings hospital at Denmark Hill, so they think it's best if he's transferred their for observation first before they operate to insert the shunt for his hydrocephalus).
Just in case you thought he was always a peaceful baby, here's one of him crying:
But he usually is quite happy and most of the time sleeps peacefully, like this:
Jonathan's been fine during the night but when they looked at his aspirates, there were chunks of stuff back in there so they've decided to stop the feeds via the mouth for now and the gastro surgeons are doing another x-ray this afternoon to make sure there aren't any obstructions higher up in the gut. (The results of the tests showed that stuff was flowing through his gut, but a lot slower than expected ... so they've to stop the feeds and give his stomach a bit more time to see if it works itself out).
The cardiologists want to take some more pictures to make sure they know where the blood flow in a particular area is going so they're doing some more imaging stuff this afternoon, there was mention of using saline or something to get a clearer picture. (The results of this scan showed that the part they were looking it was behaving as it should - but he still has his VSD + DORV).
They have no cots available at King's at the moment so they're waiting for a cot to become available and he will then be transferred there for more observations before they go ahead with anything. They'll let us know before anything happens. (The team of neurosurgeons are based at Kings hospital at Denmark Hill, so they think it's best if he's transferred their for observation first before they operate to insert the shunt for his hydrocephalus).
Just in case you thought he was always a peaceful baby, here's one of him crying:
But he usually is quite happy and most of the time sleeps peacefully, like this:
Sunday, 23 January 2011
8 Days Old - Jonathan's First Feed!
20th January 2011
It was a big day for Jonathan today!
First, he got his breathing tube removed - he recovered well from being sedated yesterday from the MRI.
Then, he got to have the very first feed of his life! Before today, he was being fed through a drip because the gastro surgeons had to make sure that his gut had recovered from the operation and the stoma was working properly.
The first attempt to feed him using a syringe was a bit messy, and Jonathan didn't look too impressed:
So they tried to get him to drink from a cup instead:
And the teddy that Por Por Emily bought him keeps him company when we're not there:
7 Days Old
19th January 2011
Jonathan had his MRI today which confirmed that the cause of his hydrocephalus is aquaductual stenosis. The good news is that it's not getting any worse, but the neurosurgeons said they will have to operate.
Jonathan was sedated so that he wouldn't move around while they did the MRI. To be on the safe side, the hooked him up to a breathing machine just in case he stopped breathing, and they'll keep him on that for the rest of the day until the sedative wears off.
Tracy and Jonathan also received their first bunch of flowers today ...
Jonathan had his MRI today which confirmed that the cause of his hydrocephalus is aquaductual stenosis. The good news is that it's not getting any worse, but the neurosurgeons said they will have to operate.
Jonathan was sedated so that he wouldn't move around while they did the MRI. To be on the safe side, the hooked him up to a breathing machine just in case he stopped breathing, and they'll keep him on that for the rest of the day until the sedative wears off.
Tracy and Jonathan also received their first bunch of flowers today ...
6 Days Old
18th January 2011 - sent very early on the morning of the 19th to family
Hi everyone,
Tracy was discharged from hospital yesterday so got to spend last night at home. I think she slept better at home, but she said it's a bit strange leaving Jonathan in NICU.
Jonathan seems to be recovering from his operation well. Unfortunately, we haven't been able to feed him yet, as there's still a few flecks of green gunky stuff coming out of his stomach. Once that clears up though, we should be able to start feeding him the milk that Tracy's been working so hard on. Emily just bought her an electric breast pump today, so that should help with the food supply!
Jonathan's scheduled for his MRI scan tomorrow to find out what's going on inside his head. He needs to be sedated for it so he stays still, but to sedate him he needs to have a ventilator hooked up again in case he stops breathing, so he'll be hooked up to that tomorrow too.
I got to hold him for the first time today for an hour, and he looked very settled, although he seems to looked settled when he's just lying in his cot too!
Anyway, we're very happy that he seems to be doing well, but please pray that that the scan will go well tomorrow so that the doctors can tell what they need to do to help him.
Love,
Chris and Tracy.
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